EDS voices

Ehlers-Danlos syndrome (EDS) is a rare condition linked to a wide range of health problems which often affect patients every hour of the day. Use this app to document how EDS affects you and your environment without risk of overloading your social networks!

Ehlers-Danlos syndrome is often undiagnosed and the inability to recognise EDS problems in public health care may lead to periods of frustration for both diagnosed and non-diagnosed EDS patients. This app can also be used to channel some of this frustration and raise some awareness of the problems.

We want to explicitly emphasis that this is not a forum app on purpose, and that your voice cannot be commented or liked (unless many users request these features from within the app). Also note that voices with bad language may be removed without further notice by our moderators.

The app also contain quick links to important information found on the internet, such as printable emergency wallet cards and the possibility to email or SMS links with information to your friends or medical doctors.